About Us

What do we do?

Nick's family, friends, and a host of caring volunteers contribute their time and efforts to raise money to make all our fundraisers as successful as possible.

 

We involve the local community as well. Schools, businesses, service groups, and townspeople come together to organize and staff our events.

 

See our 2018 Brochure for additional details. Read the media release about our most recent awards.

 

 

 

What is Ewing's Sarcoma?

Ewing's Sarcoma is a rare form of bone cancer which strikes children and adolescents.

 

Actually, it is a group of four different types of cancer, known collectively as the Ewing's family of tumors (EFT).About 300 cases occur every year in the U.S.

As a consequence, diagnosis is often delayed, and research efforts are underfunded.

 

Despite its status as a rare cancer, Ewing's sarcoma currently affects several Quad City area children and young adults.

Who are we?

The Nick Teddy Foundation was established in 2012 in loving memory of Nicholas Theodore Strub, who died of complications of Ewing's Sarcoma on November 22, 2011.

 

Based in Nick's hometown of Port Byron, Illinois, we are a 501(c)(3) non-profit organization. All donations made to the foundation will be deductible to the extent allowable by US law.

 

Research Projects

To date, we have donated just under $112,000 to fund research.

 

Our research proceeds have helped fund a study into chemo-resistance in Ewing's sarcoma. Funding was via the Liddy Shriver Sarcoma Initiative.

 

We most recently provided $10,000 for studies in Dr. Ralph Berardinis' lab investigating disruption of metabolic pathways in Ewing's sarcoma tumors. This research is part of the Ewing's Sarcoma Research Program at the University of Texas Southwestern, in partnership with the 1 Million 4 Anna Foundation.

View Video 

Patient Support

In our first 6 years, we have donated just over $27,000 to local patients to help with travel, lodging, and medical expenses.

In 2018, proceeds from our fundraisers enabled us to provide $8,000 to two local patients in need.

We also provide funds for Tori's Art of Hope, a local project in memory of Tori Vogel, who died in 2014 of a secondary cancer caused by her treatment for Ewing's sarcoma. Her family assembles gable boxes full of toys, coloring books, crafts, and other goodies to brighten the stays of  children in treatment at Stead Family Children's Hospital.

Raising Awareness 

We let everyone know about our efforts on behalf of our Ewing's sarcoma families, providing updates through our Facebook and Twitter feeds, with help from our local broadcast and print media.

 

 

 

Board of Directors

President: Jeff Bloomer
Vice President: Brian Strub
Treasurer: Krissy Strub
Secretary: Darrin Pearsall
Marketing: Nancy Strub

Development: Dennis Olson


Executive Director: Holly Larson

Nick Teddy Foundation

P.O. Box 133

Port Byron, IL 61275

402-657-4939

foundation@nickteddy.org

We are a 501 (c)(3) organization

@Nick Teddy Foundation

#NickTeddyOrg

#BeatEwingsSarcoma